"I don't know of anyone who has more information on all the aspects of FMS/CFIDS/ME than you do. God bless you for all of the work that you do for so little."

"Thank you for being so open to share your journey www.fms-help.com. It has to be an encouragement to so many in the CFIDS/ME/FIBRO community."

"I heard about diatomaceous earth from a friend of mine a few weeks ago and started looking into it. I purchased a 10lb bag of the DE and started using it about a week and a half ago. I have to say, my energy level has been better, and the procrastinating about getting up to do something or go anywhere has been less, because I do have more energy. This is NOT like the DE that would be used in a swimming pool, that would be dangerous to consume. It is a food grade DE and can be used for pets, humans, pest control etc. The site below gives alot of info on how it works, and testimonies...lots of them for many different illnesses. It is not too expensive, but the more you buy, the less you pay for it. I have shared it with a few of my friends that also have fibromyalgia, chronic pain, rheumatoid arthritis, etc. A few are trying it, and one in particular, has noticed a huge difference in her burning stomach pain and energy. I think of you and all your newsletter readers that may like this info. Please check it out and share if you feel it may be able to help anyone you know. https://www.earthworkshealth.com/. - P.S. Please let your readers know they must be careful if they are going to purchase food grade DE from somewhere other than the retailer I sent a link for. Earthworks says that store DE may contain traces of pesticides and other things we really shouldn't consume. Earthworks DE is pure, nothing else added."

"I have tried DE and it did not help me as far as I could tell. I did use it on my plants. They liked it!"

FROM DOM: As usual, we have to try various things to find what helps us. I have been a guinea pig for about 40 years now. A list of the things that have helped me (discovered by trial and error) is at www.fms-help.com/what.htm.

"I agree with you that some things that seemed to work in the past are not working as well. So, I guess we are always looking for a new combination. Only someone with fibro understands what this is like to live with and how very careful we have to be."

"I decided what I really needed this Sunday morning was another cup of coffee, but not instant. First the coffee machine needed more water. When I filled it, I noticed my glass of water next to the filter. I went to the bedroom to fetch my tablets and saw a box. I came back to the kitchen with the box. I wanted to drink coffee from my new mug, which was sealed in a another box with a present for my friend. I went half way to the spare bedroom, and realized I had no tape to reseal the box. I picked up my cell phone to sms Malcolm to bring me more tape. I walked back into the spare room to fetch something, but forgot what by the time I was there. I saw the other box the set of mugs came in and brought it back into the dining room. I put all the guinea fowl feathers I had collected into the box with great difficulty, they kept on popping out. The feathers had been on the table for the last 2 months, waiting for me to do something with them. I put them back in the spare room cupboard.I found my cell phone on the dining room table where I had left it when I saw the feathers. I still had not sms Malcolm for more tape. I went back into kitchen and took tablets. I saw the coffee machine was on and for the life of me could not understand why it was on. The foam in the cappuccino machine was flat. I needed the mug in the box with the present. Oh no. I was going to start the whole episode over again!!! I gave up and climbed back into bed. Now I really needed coffee and my pillow was in the spare room. All this and my husband thinks I do nothing the whole day. He is sooooooo wrong. I do things the whole day, I just never achieve anything. I did not have my coffee, sms Malcolm, open the sealed box, fetch my pillow, and I am typing this without glasses, because if I start looking for them.....and its only 9 a.m. I did less when I was working!!!"

"I have had some success with Tommie Copper compression wear http://www.reviewopedia.com/tommie-copper-reviews. I have no idea why copper would help with the pain but it does seem to be better when I wear it."

“Always be humble and gentle. Be patient with each other, making allowance for each other's faults because of your love.” - Ephesians 4:2 NLT

FROM DOM: Alan (our plumber who moved away to another state) has a wonderful ministry of sending a Bible verse every day to anyone who asks to be placed on the list. Email anndavid45@gmail.com. Alan's daily Bible verses are often just what the doctor ordered!

FROM DOM: This is something like chapstick for cold sores. It contains essential oils and other ingredients. It works great for me! Just ordered a second one at http://www.coldsoresbegone.com/.

"Cherry juice concentrate - you can buy it at GNC stores in the U.S.- apparently people with gout have found it to be of great benefit."

http://www.bodylogicmd.com/for-men/irritable-men-syndrome - Snippet: "Irritable Men Syndrome or Irritable Male Syndrome (IMS) is the term used to describe the mood swings in men. Irritability in men is often a result of high stress cortisol levels and low testosterone levels. Some men respond by acting out while others hold these feelings in and become depressed. Behaviors characteristic of men with Irritable Men Syndrome include: Angry, Sarcastic, Tense, Argumentative, Frustrated, Demanding, Sad, Impatient, Anxious, Hostile, Unloving, Withdrawn, Defensive, Dissatisfied."

"One thing that has stood out over the years is that I've never met a person whose life was a complete mess if they were following God's commandments...never...as in ever. Many times in my earlier years I felt 'stifled'...but..as I grew older I realized those "boundaries" were set to protect me...not take the fun out of life! A truly "free" life comes from living the commandments and not busting them. I tell my 13 blessings (kids) that God's boundaries are 'divine fences.' They keep us safe and they keep us from going down the wrong road. Big ol' chains of bondage are awaiting those who go outside God's boundaries. I'm not passing up His blessings for the illusion of what our world calls freedom! I know what real freedom is...it's staying within His fence...His hedge of protection for me! Give me God's fence and hedge any day!"

FROM DOM: This lady has 13 children and runs a home business. She also lost 80 pounds. Totally amazing lady! (I have a friend with 13 children too. She had about one a year! My friend is a Godly woman, beautiful, calm, organized, sweet.) I totally agree with Wendy on "divine fences." As a teenager (about a billion years ago...I am 61), I thought that God's rules were there because He didn't want us to have any fun. But then my college boyfriend took me to a Bill Gothard seminar in Los Angeles, and my whole perspective changed. I learned that God's boundaries are there to protect us, and yes, yes, yes! Huge chains of bondage await those who step outside into the danger zone. It came as a sweet revelation to me that God LOVES us. This is my testimony: www.fms-help.com/salvation.htm.

http://www.sfgate.com/health/article/Chronic-fatigue-patients-frustrated-with-FDA-4283890.php - Snippet: "If it had won approval, Ampligen would have been the first drug available specifically to treat chronic fatigue syndrome. The drug bolsters the immune system and works as an antiviral against a variety of pathogens, according to the manufacturer, Hemispherx Biopharma in Philadelphia. Ampligen also is being studied as a possible treatment for drug-resistant HIV infections. Ampligen was rejected because FDA officials weren't convinced of its efficacy or its safety, according to a letter sent to the drug manufacturer. There have been concerns about the drug's effects on the kidneys and liver. Chronic fatigue syndrome can be a debilitating disease marked by oppressive fatigue that lasts for days, weeks or even months and doesn't go away with rest or proper sleep. Burmeister describes it as constantly living with the worst jet-lag combined with the worst hangover of her life. Other common symptoms include mental fuzziness and poor memory, sore throat and headaches, pain in the joints and muscles, and gastrointestinal problems. The disease was identified in the early 1980s, and more than a million people in the United States are believed to suffer from it. But it's only in the past decade that chronic fatigue syndrome has received serious recognition by federal agencies like the U.S. Centers for Disease Control and Prevention and the National Institutes of Health. Research into it is still minimal. Scientists believe it's likely caused by a virus, but they've never found it. Because there is no drug to treat chronic fatigue syndrome, patients often are advised to seek behavioral therapy to learn to live with their condition. That's why the rejection of Ampligen was especially upsetting to so many chronic fatigue sufferers, said Dr. Jose Montoya, an infectious disease specialist who helped establish a chronic fatigue syndrome team at Stanford. Montoya said he isn't convinced of Ampligen's effectiveness, but he fully appreciates the frustration that patients, and their doctors, feel at having nothing to ease their symptoms. 'I have been very hesitant to use it, and I have never indicated it or prescribed it,' Montoya said. 'But it appears there is a group of patients that do benefit from Ampligen. And with that FDA decision, you are taking away access. It's a huge blow to the patients.' On the other hand, he added, 'we're another step toward bringing the disease to a center stage of government agencies. We're making them see that this is an unmet medical need and something needs to be done.'"

FROM DOM: Still doing well with Rutavala essential oil for sleep. Have been able to cut back my sleep meds slightly. Still, about every 7-10 days, I have a night when I can't sleep until 4 or 5 a.m. no matter what I do. Just crummy circadian rhythm I guess, but so much better than it used to be: www.fms-help.com/insomnia.htm.

"I had something happen this morning, around 5:30a.m. I often have a sore scalp, which I'm thinking must be related to the FMS/CFIDS some way. I have FMS books, but as I cried to God this morning to ask him to stop it, I shortly fell asleep. I generally don't wake up before 8 a.m. When I did wake about 8 a.m., the burning was gone, and my first thought was, please don't let that happen again!! Also, the past few months I've had this lump in the middle of my skull, about the size of a grape. I've got so many doctor appointments right now that the thought of another is a little overwhelming. I had a sleep study, but I had soooo many episodes of stopping breathing that I've got to have one that is more specialized. I've also had trouble the past few months reading. The opthamologist wasn't surprised since I've got cataracts on both eyes, which will be removed after the growth from my eye is removed. After all of that is done we'll be discussing options I'll have for my macular degeneration. I'm giving you much more info that I was planning...sorry about that! The barometer has been falling since early this morning, about the same time that my scalp felt like it was on fire."

FROM DOM: Anyone else have this...or have a solution? I have heard from other fibromites in past years who have had burning skin sensations. Serzone and Neurontin have been mentioned as helpful for some. See http://index.healthboards.com/fibromyalgia/dizzy-burning-skin/1/. Also, search my past newsletters using the search box at the end of this page.

1. Since it is a metal, it could have a tendency to break down, and leach metals into surrounding tissues and eventually into the blood, to be transported to organs and tissues all over the body.

2. Being a metal, it can act as a "lightening rod" for EMFs. And the fact that the metal is so close to the brain, is not a good thing. I personally, don't want to take the chance that my dental work is attracting EMFs to my brain.

3. In spite the fact that literature says it is "inert", there have been way too many cases of rejection and subsequent infection. Of course, the manufacturer's literature doesn't mention that! I have read stories, where the titanium implant seemed okay, in the beginning, so multiple subsequent implants were placed, only to have ALL of them go bad after a period of time, which meant ALL of them had to be pulled out. : ( What a nightmare that must be . . . to spend all that money, only to have to have them all pulled out, not to mention the subsequent awful health repercussions.

Ceramic implants have been around long enough, that there are plenty of case studies, showing they don't have the same problems as titanium implants, and don't break down, like titanium implants can. Basically, they are like hard glass, with none of the breakdown or conductivity of titanium.

If your new dentist is open to ceramic implants, and wants more info, you might have him give my dentist a call. Since he goes all over the country and now is going outside the U.S., to teach other dentists about how to do Z-Systems Ceramic implants http://zsystemsusa.com/ceramic-dental-implants/, I'm sure he would be more than happy to talk to your dentist, about it."

"When my daughter lost her wisdom teeth at 16, she took forever to heal, it's just the way it is with CFIDS."

FROM DOM: I am a slow healer as well. It's like my skin doesn't knit together quickly. When I had my ears pierced a few decades ago, the holes never healed. I finally had to give up on the idea of having pierced ears.

"I am going through a severe flare-up of IBS. It all started early one morning about 3 a.m. and has continued for at least 1-1/2 days. I don't recall having a flare-up of this intensity in 15 years. I cannot hardly move it is so painful. My stomach is so tumultuous and in turmoil. This morning I took two Dulcolax and am awaiting some relief. I searched the Internet for foods that trigger IBS and the list is phenomenal. I drank some peppermint tea flavored with honey in hopes of some relief--but none yet."

FROM DOM: My doc says that fibromyalgia affects many systems of the body. Several years ago Blue Cross Blue Shield denied me health insurance saying that since fibromyalgia affects a person from head to toe, they would have to exclude my whole body! See my homepage for articles on the autonomic nervous system and central nervous system (tan box on left).

FROM DOM: Joyce Meyer's talks on TV (Enjoying Everyday Life) are very uplifting and inspirational. I picked up some of her books at a yard sale a few years ago: "Help Me I'm Worried," "Help Me I'm Stressed" and a few others....excellent!

II Corinthians 1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God." Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.